It is Day BMT Plus 101, and everything is going well.

Loving a cheeky swing!!

Life is continuing now we are back home. We both are working 3 days a week each to help bring the pennies in and also to cope with the semi isolation that goes with looking after Anabelle. We are still not able to take her to any public places such as shops, restaurants etc.. Our only solace is that the beach is just down the road where we can take her for walks. On the way to the beach the other day we noticed the park was empty so had a little blast on the slide and swings, which she absolutly enjoyed.  Great Ormond Street are pleased with her progress though and we now are only required to go to Day Clinic at Safari Ward once every 4 weeks. We still get the community team coming round on Mondays to change dressings and take bloods.
She has now stopped taking the MMF and the only immune suppressant she is now on is the Ciclosporin. Although her blood counts are progressing well her Immunity level is still very low. This is will in part be down to the Ciclosporin. Her current counts are 70 and we need them to be at 300. A side effect of the Ciclosporin is increased growth of body hair and we are now starting to see this on Anabelle . Most notably on her eyebrows, face, shoulders and back. As she is progressing well we have been told that at the next visit on the 28th November to Safari Ward they will look at taking her off the Ciclosporin. Hopefully before she turns into a little monkey!!!

The Great South Run came and went in Portsmouth last week. We had a few runners running for the MPS Society. I want to say a massive thank you to all these runners, supporters and all those who sponsored us. If you haven't sponsored but would like to do so, good news, you still can!! Just click the link on the right hand side.

Runners, supporters & Anabelle braving the cold

Some of the runners re - de hydrating after the race in the pub!!