Wednesday, 1 August 2012

It is now Day Minus Two.
She is on her last day of her lovely concoction of Fludarabine and Bulsulfan before her rest day of day Minus 1. However after checking her Bulsulfan levels she needs an extra infusion on the rest day. The last couple of day have been really hard. She has not been a happy little bunny at all. She wakes up- she cries, she gets changed - she cries, she has a bath - she cries (and she used to love her baths). To top it all we decided to cut all her hair off before it fell out. this was probably the hardest thing we have ever had to do but we know it is for the best long run. We are just hoping that it grows back the same way and not dark and curly as we have heard it can go after a bone marrow transplant (no offence to the people with dark curly hair).
Anabelle's moods seem to have started at about the same time as Ciclosporin commencing as per her protocol. (thanks to Teresa's comments for us to notice the connection) She is not drawing her legs to her stomach to indicate stomach pain but apparently it is also known to bring on head aches. Its frustrating because she cant tell us!!! Her codeine has been upped and the Ciclosporin has been diluted. This seems to have a positive effect.

6 comments:

  1. Amazingly Anabelle still smiling even after all she's been through, love to you all xxxx

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  2. She still has her beautiful smile.

    Paul

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  3. She's still soo beautiful, with a face like hers she can pull off having no hair with no probs. glad to see she's enjoying peekaboo barn!! Try to keep yer chin up, we're all missing you loads!! Even Lucia is going mad and started eating cat food. Btw we are both slightly offended by the dark, curly hair comment!!

    Love you loads, can't wait to see you on Saturday xxx

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  4. Like sally said, She still looks beautiful and im really pleased she has managed a checky smile for the photo. The dark curly hair comment made me chuckle as I thought of sally right away :)
    It sounds like your all having an awful time. Just stay strong as it has got to get better.....You knew it was gonna be tough and i no you will all get through this. You will certainly be needing a holiday once it's all over that's for sure. . Thinking of you every day and praying that it's over soon.
    Big big hugs to you all and extra kisses for Anabelle. Lots of love lou, Andy and Molly and a big lick from pip:) xxxxxxx

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  5. Thinking of you all the time - sending all our love XXX

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  6. Thinking of the 3 of yous. Your strength is astonishing. Dave and Lucia (with the beginnings of dark, curly hair!)

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