Tuesday, 21 August 2012


Day Plus 18

The last few days have been tough. She currently has the mild symptoms of graft versus host which is what we have been expecting. She has developed a rash, her bum is really sore and she has developed mucasistis. For the last couple of days she has been waking up and throwing up a combination of mucus and blood, not very pleasant at all. She had been waking up through the night in pain and during the day it was clear she was suffering from discomfort inside. The specialists are on the case though, and when symptoms have manifested they have been treated. In addition to the regular doctors and nurses we have had visits from Pain Management Specialists, Tissue Viability Specialists and X ray Specialists. The morphine has been increased so she now has a continual background feed with an additional push from the nurses. She has been given oxygen whilst sleeping as her SAT levels were low. A chest x ray was carried out as a precaution and all found to be good.  She has had a couple of temperature spikes and paracetamol has been administered. She has now had 3 blood transfusions and 3 platelet transfusions. Her Neutrophils however are showing signs of rising. Yesterday they were 0.12 and today they are at 0.14. As her Neutrophils rise we are expecting to see the illness’s slowly decline (touch wood). These are usual symptons for someone who has undergone a stem cell transfusion so altough it is not pleasant it could be a hell of a lot worse.   Even with  a swollen face and doped up with morphine she still likes to sing and perform the actions to head, shoulders, kness and toes.

7 comments:

  1. Stay strong - you all are doing so well. Thinking of you all x marie x

    ReplyDelete
  2. All 3 of you are amazing - but Anabelle is the most amazing!!! What a star !! Thinking of you all - Rosslyn x

    ReplyDelete
  3. Wow, what an incredibly tough journey you are all on! Annabelle's strength is certainly what I am thinking of when I'm pounding the streets in preparation for the Great South run! I haven't managed to look at the blog for ages so it's been good to get an update. Stay strong......you're all being amazing! We're thinking of you and sending lots of love and hugs to Annabelle! Kelly xx

    ReplyDelete
  4. Thinking of u all always . Hang in in there and stay strong .It all sounds awful and I can only imagine the pain u r all going thru. Fingers crossed tomorrow is a bettet day. Bigs hugs to u all. Lou, Andy and Molly xx

    ReplyDelete
  5. Hi all, Just caught up with Annabelles progress and so pleased that her little cells are starting to grow back. Fingers crossed for you all, keep strong, you are doing amazing.
    Loving the smiley pictures too, such a special strong little lady

    Love Sam, Tony & Ellie (Sal's NATS pals) xxx

    ReplyDelete
  6. Sarah Tyson aka Hatton1 September 2012 at 15:12

    Hi Leanne, I have been following annabells progress, all I can say is I am in awe of everything that you as a family are going through, you are being so strong and incredibly brave all though I will probably never understand fully what you are going through you are being inspirational with your courage.

    ReplyDelete
  7. I know you are staying up in London but if you wanted to have an overdue catch up I don't mind coming up to meet you for lunch, maybe a bit of normality for an hour or so, text me will send you a pm on face book with my number xx

    ReplyDelete